Sleep Problem / Apnea

My Sleeping Angel..

 

Sejak lepas operation haritu, mama notice Z selalu bangun malam. Well, dia takde lah bangun and wide awake gitu (ada few occassion jugak actually yg dia bangun n main2), mostly dia cuma terjaga and then 'humming' toss n turn and trying to get back to sleep. at least 2-3 kali jugak tetiap malam.. kadang2 more than 5 times! (memang zombie la mama di siang hari)

Kalau mama cepat2 tepuk2 dia, dia akan tido balik.. tapi kalau mama pun tak sedar, he could end up awake the whole night! Sebelum operation pun dia memang selalu turn n toss around masa tido. orang kita cakap 'tido buas'. Tapi dia punya 'buas' tu memang constantly. unless kalau dia betul2 penat. 

Cikgu pun selalu komplen dia nampak penat dan mengantuk di sekolah. Masa awal2 tu mama relatekan dengan his bowel problem.. but then bila dah buat operation, things just gotten worst.

Sleep apnea is very common in Down Syndrome. Tapi mama tak rasa keadaan Z chronic sangat.. but since we had appointment with his Paed today, mama mention jer la.. dia kata kalau sleep apnea ni selalunya tidur berdengkur, sometime the child will have to sleep in sitting position so they can breath. Z takde lah berdengkur sangat.. kalau penat jer.. he also did not sleep in sit up position. Tapi mama notice he does strecth his neck while sleeping. Always. Sebabkan dia tidur meniarap, Dr Murnaghan kata maybe that's how he try to overcome his breathing problem. Hmmm... Pastu kalau dia tidur terlentang, mesti dia akan tersedak air liur. Kadang2 sampai menangis la..

Dr Murnaghan will refer us to ENT specialist to do a check on his throat. Kalau his airway kecik, kena la buat sleep study.

Dr. Murnaghan tanya jugak, masa kat hospital tu diorang tak noticed ke Z selalu bangun malam.. Masalahnya nurse datang every hour, so every hour lah Z terjaga.. Lagipun dia on a lot of pain killer, memang keje tido jer la.. Tapi bila difikirkan balik, mama baru teringat, masa Z kat hospital tu, memang heart rate dia (when he's asleep) terlalu tinggi/rendah. Asik berbunyi jer heart rate monitor tu.. first few days tu kena guna mesin CTG utk monitor. Sampai kena buat ECHO lah.. But his heart is perfect. Pastu lak, memang dia susah sangat nak tido time tu.. kadang2 sampai 2 dose nurofen nurse bagi, tak jugak tido.. Dia memang tak boleh bergerak sangat pun sebab sakit kan.. Hmm.. Hmmm... Now that I've read more about sleep apnea and its effect, the more I am getting nervous about it.. Mesti lambat lagi nak dapat appointment pun kan.. sigh...

Anyway, for the last few weeks.. (2-3 minggu jugak) mama bought few Essentials Oils. One of it call 'peaceful' which could help with sleep problem (and anxiety). Sejak pakai EO ni mama perasan he is sleeping better. But still there were nights yg dia akan bangun 2-3 kali.. tapi ada jugak malam yg Z tak bangun langsung! at least some improvements la.. I will blog about EO in details kalau ada masa :D

Sakit Mata (Conjunctivitis)

wassup?

Dh seminggu Z sakit mata x baik2 nih.. mama pun berjangkit dengan Z dah dekat 5 hari x baik2 lagi.
Tapi Z still active macam biasa jer la.. cuma discharged tu kena lap selalu.. mata dia pun x merah, tapi kejap2 mesti nak gosok mata.. mata mama pulak merah, but less discharged.

Sticky eyes

Anti Rini bagi prescription ubat mata, pastu mama up kan probiotic intake. tak perlulah jumpa doctor.. Tak ambik MC pun, banyak keje la.. kalau tak busy confirm mama dah awal2 p clinic hehe.. lagipun sakit mata jangkit melalui sentuhan jer, mana ada org nk sentuh mata mama pulak kan.. (tapi kalau mama tenyeh mata, then p sentuh document apa2, then org lain plak p sentuh documents tu camner?) mata Z jer la.. mama dah pesan kat cikgu supaya basuh tangan tiap kali lepas cuci mata Z. Obviously he got the infection from the creche.. diorang x cuci tangan betul2 la tu.. hnss!

Follow-up

Tadi ada follow-up dgn Mr. Samy, surgeon. Nampak jer Mr Samy, terus melalak. Mmg dari dulu lagi, asal tgk muka Mr Samy, mesti meraung2. Z sedar kot time diorang operate tu? (Masa diorang surung keluar theater mmg Z dah sedar pun)


Tunggu turn

Anyway x de la dia check apa pun.. Luka surgery mmg dh pulih sepenuhnya. Cuma bab muntah2 tu jer la..

Kebetulan sejak semalam Z muntah2 balik. Dia muntah sekali jer, tapi tiap kali makan, baru 2-3 sudu mulalah dia meloya2. Air liur menjejeh2, tersangap2 terus dia refused utk makan. Minum susu ok jer. Last 2 weeks pun jadi jugak.

Very similar to what had happen before. Z bukanlah jenis yg selalu muntah. The first 2.5 year of his life dia cuma muntah 4-5 kali jer kot. Until last december when he started having those symptom. Sebab tu lah mama risau.

Mr Samy kata, from what he has found during surgery (lots of adhesias) mmg expected it will happen again pun. :((

So sekarang we just have to try to delay the need for next surgery jer la. Kena make sure The bowel not blocked again. Tiap kali dia muntah, kena bagi fluid jer until there is bowel movement. But this is only temporary management jer la.. Sooner or later it will become worst and another surgery will be needed.. Scary, but at least we know what to expect..

Semoga Allah terus melindungi anak syurga mama.. :(

Career?

Last week operation manager mama bagitau ada new senior position available. She thinks i'm deserved to take up the positions and wants me to think about it..

Dengan ekonomi ireland yg sangat teruk skrg, this is such a golden opportunity. I've been in my current position for nearly 3 years now. Dah lemau di sini :(. 

Yes, it is a good boost to my career & my financial..

But...

This also meaning i have to go back to my full 5 days job soon. Z has been very good in school now, so probably not that bad if he spends 5 days per week there.. Tapi how about appointments, therapies and all? Sekarang pun every week mesti ada at least 1 appointment. How can we manage that?

Time & energy? Mampukah mama nk uruskan semuanya? Work n home? i think i am ok with the work part.. but how about home? Family? Z especially? Will i have time to practise his therapies at home? My quality time with him will be affected too. Will he have all the attention and love he supposed to have? 

Kadang2 cemburu juga tengok kawan2 mama yang dah 'advance' in their career. I'm still stuck here.. 

This is my opportunity. But is this really what i want NOW? Am i ready?

After few days of thinking.. I think i have made up my mind. NO, im not ready. i've seen a good progress with Z for the last couple of months, and he does make me proud of what i am doing right now. I might not have more money or status, but I have him. And i want to continue doing what im doing now. 

Hopefully this same opportunity will arise again in the future. And by that time hopefully i am more ready InsyaAllah..

Ya Allah.. Redha lah daku dengan ketentuanMu.. Amin..

Mama loves you so much Z, muahs!!