Lilypie Premature Baby tickers

Lilypie Premature Baby tickers

Thursday, July 29, 2010

34th weeks update

Harini dah masuk 34 mgu.. fuh, exactly 2 more weeks to go.. mampukah??

perut sgt keras dan tegang.. braxton hicks bertambah sakit.. harapnyalah its only BH.. sbb rasnyaa cramping & tightening sensations i've been feeling for the past few days tu blom actual contraction yet.. tiap kali rasa, mesti tgk jam.. kot2 la ada rentak ke apa kan.. but so far, mmg sesuka hati dia aje nk dtg.. tapi mmg frequent laa..

sakit belakang? huhhuhu.. mmg tiap kali nk ubah posisi kalau duduk or baring tu, akan rasa mcm nk tercabut jer pinggang nih.. stay in 1 position pun kejap2 aje.. then kene ubah, sandar ke apa ker.. then kene baring plak..

berdiri pun mcm gigil2 jer peha n lutut.. seriously, dgn my belly yg dh measured at 42 week nih, mmg berat gilos laa.. smlm punya check up, berat naik lg sekilo in 1 week. tapi mmg kompem berat air jer lebih, because berat mummy still steady jer (tulang rangka masih timbul nih).. maybe berat baby pun bertambah la skit kot.. tapi perut mmg terasa sgt beratnya..

tido malam is the worst part. kalau boleh mcm tak mo tido jer.. slalunya dpt tido dlm 2 hrs gitu jer. then mesti dh xleh tido. pusing kanan salah, pusing kiri salah.. dah la tiap kali nk pusing tu, rase mcm breathless giler.. last2 bangun aje.. duduk berteleku di ujung katil sambil main game kat phone..sampai la dh mengantukk sangat nanti, baru tido balik.. kadang2 tu terjaga dr pukul 1.30 mcm tu, then sedar2 dah pukul 5 pun masih x bleh tido.. kalau hubby x oncall malam, slalunya dia la yg layan (through phone) kalau dia oncall or sometime overtime ker, kelip2 jer la sorang2.. huhuh

baby movement plak, semakin sukar nk dirasa.bukan sebab baby dh besar n tk leh gerak mcm other normal pregnancy, tapi sebab air terlalu banyak, so ruangan antara baby n uterus wall tu jauh sgt. baby berenang2 pun, mummy tak leh rasa.. kick n punching pun dh kurang rasa.. kalau baring baru boleh rasa. risau jugak sbnrnya.. baby nih gerak ke tak.. dh report dekat doctor, dia kata mmg mcm tu lah conditon akhir2 nih.. haih, kalau lah i bawak balik my own doppler, tak de la nk risau2 mcm nih. nyesal btol sbb shipping doppler tu haritu.. the shipping box expected to arrive middle of august camtu.. dh takde maknanyaa lagi.. huhuhu.. apa nk buat, kita hanya mampu merancang..

other than that, rasanya everything is normal. my hb is good (100/60), urine test is perfect, blood test pun okeh aje.. oh, baby heartbeat pun ok.. around 140 per minutes.

hmm..itu jer la kot complaint saya so far.. apa2 pun, saya bersyukur kerana diberi peluang utk menikmati pengalaman ini.. bak kata jiran2 saya, macam tu la peritnya nak mengandung dan melahirkan seorang zuriat..

ps: to my baby, i know u r worth every pain and tears. mummy harap baby pun keep on fighting. mummy cant wait to meet u soon..

Monday, July 26, 2010

Duodenal Atresia

Seperti yg dh di khabarkan before, my baby was diagnosed with Duodenal Atresia (DA).
actually, masa dr kamal mentioned about this condition, i hv no clue at all pun.. bila tanya dia, dia ckp that basically baby ada masalah with his usus kecik. Ususnya not fully performed and either fully closed/sempit menyebabkan kesukaran utk baby memprocess makanan/minuman.

DA is a rare condition and only happens in 1:10,000 birth, and can also be associated with other conditions such as heart problem, lung, pancreases and chromosome abnormalities (about 30% of child diagnosed with DA also have Down’s Syndrome)


Image googled


What happen before baby’s birth?

Mmg slalu jugak DA associated with Polyhydramnios (excessive of amniotic fluid in mummy’s womb). Air ketuban yg banyak terhasil disebabkan oleh keadaan baby yg tak dapat memproses liquid surrounding. Baby normally akan minum the fluid and then kuarkan balik as his urine. Dgn cara tersebut, dia dpt mengawal quantity air dlm perut maknya.. tapi disebabkan my baby tak dpt memproses liquid tersebut, amniotic fluid dlm uterus saya pun keep on increasing.
Disebabkan pressure from amniotic fluid surrounding him (and also his inability utk process food) baby with DA ni slalunya kurang skit la growth berbanding normal baby. (so far Alhamdulillah, my baby’s growth rate masih normal..)
Also, kalau tgk menerusi scan, perut baby akan Nampak dilated sedikit. Tapi at this stage doctor belum dapat memastikan how severe the problem is until the baby is born.

After Delivery
As soon as the baby is born, slalunya they will look normal – until they are being feed. Slalunya baby with DA akan terus muntah2 (hijau) within few hrs of their life.
As for my baby’s case, since we already detected his condition earlier, as soon as he is born, dia akan terus di ambik alih oleh neonatal team so they can perform full check up and x-ray so they’ll know exactly how severe the problem is and if there are any other problems beside DA.
Then they will decide on the surgery utk betulkan apa2 yg tak betul tu.. slalunya surgery will be performed within 3 days of the baby’s life.. and until then, my baby hanya boleh feeding through IV sahaja (even until few weeks after surgery)


The Surgery

Buat masa sekarang kite masih blom tahu the plan for surgery, but if the condition is not severe normally it will only take about 90 minutes. We will get a more detailed plan for surgery as soon as the baby is born.

After surgery
Slalunya within 2 weeks after surgery, baby will still be in NICU and will be feed through IV. Kalau condition bertambah baik, they will gradually introduced milk (still melalui IV) and see if the baby could accept any fluids and most importantly nak tgk if the baby dapat poop or pee. Kalau everything ok, barulah baby boleh minum through direct feeding (bottle / breast). Slalunya kalau condition not worsening, thats the only surgery he will ever need, tapi it is normal to have follow up surgery which will depend on how successful the first one is.

Wallahuaklam..

Semoga my baby dilindungiNya.. amin..

p/s: baby, mummy will always pray for you. Whatever the future will bring, mummy will always luv you and will be by your side.

Thursday, July 22, 2010

2nd Appointment with Dr. Bava (21/07/10)

seawal pukul 9 pagi lg saya dh tercongok kat HSB tu.. ingatkan dh awal, rupanya saya dh giliran ke 4. mind you, dr bava nih setiap sorang yg dia jumpa took about an hr!. so, saya cuma dpt jumpa dia around 12.45 camtu.. adoiii.. kebas bontot! according to nurses kat situ, mmg all serious cases kat penang, kedah n perlis nih akan di refer ke dr. bava, that's why susah bebenor nk jumpa dia.. huhuhu

anyway, discussion goes quit well. he quite concern dgn my liquid (air ketuban) level. perut dh terlalu besar n penuh. walaupun baru masuk 33 weeks, my uterus measured at 40 weeks!(tinggi rahim). he suggest to perform amniocentesis (process menyedut air ketuban dr perut saye) utk mengurangkan bebanan saya. I read about that before, mcm ngerii jerr.. plus its only a temporary relief. lps 3-4 hari kene buat lg.. then might be risk for infection to the baby. so, saya decide NO! at least for the moment laa.. rasanya boleh bertahan lagi nih.. walopon jalan pun dh terbongkok2.. huhuhu..

then mcm biasa scan baby.. baby's growth as per schedule. he estimate by 36 week, baby weight will be 2.5kg. so, mmg a good sign laa.. then bincang2 pasal baby's duodenal (usus) conditions. walopon mmg dh confirm his problem, tapi severeness tu still x dpt diketahui through ultrasound. mmg kene tunggu baby lahir dulu baru boleh perform xray n seterusnya surgery.

he has decided to induce/operate me on the 12th august. memula dia plan nk buat 1 week after that, tapi bila i bagitau hubby cuma balik seminggu jer, then dia pun change the date to 12. another thing is, he think i might need c-section since baby masih tak enggage and possibly mmg x kan enggaged pun sbb air banyak sgt, so dia x leh turun katanya..hmm.. tak kisah la.. mmg dari awal pun i dh ready for that..(eh, ye ke ready.. huhuhu)

cuma now rasanya mcm hubby x sempat jer berada di sisi when they perform surgery on baby..haih, dapatkah saya bertabah sorang2 time baby di operate tu.. huhuhu.. anyway, dr bava dh set appointment for hubby to meet the surgeon nanti. at least we got some idea on the plan and all.. kalau boleh nk mintak surgeon tu buat awal skit, so hubby can be there as well.

1 more thing, dr bava juga risau kalau my water leak before time or even worst takut early membrane rupture, so,dia ckp 8/8 tu saye dh kene admit dah.. hmm, dh la hubby balik 8/8 tu, terus kene g spital la jawabnya.. siann dia, dh ler keje kat hospital, cuti pun kene spend kat spital jugak..

rasanya tu jer la kot main point utk meeting smlm. next appointment will be 01/08. by meantime, dia suruh kurangkan gerak n rest well..

hopefully everything goes as plan.. kita hanya mampu merancang, Allah SWT juga yg akan menentukan segalanya..

Wednesday, July 21, 2010

Edcoustic - Muhasabah Cinta

Found this video on facebook as uploaded by friend of mine..




Muhasabah Cinta


Wahai... Pemilik nyawaku
Betapa lemah diriku ini
Berat ujian dari Mu
Ku pasrahkan semua pada Mu

Tuhan... Baru ku sadar
Indah nikmat sehat itu
Tak pandai aku bersyukur
Kini kuharapkan cintaMu

Reff. :
Kata-kata cinta terucap indah
Mengalir berzikir di kidung doaku
Sakit yang ku rasa biar jadi penawar dosaku
Butir-butir cinta air mataku
Teringat semua yang Kau beri untukku
Ampuni khilaf dan salah selama ini
Ya ilahi....
Muhasabah cintaku...

Tuhan... Kuatkan aku
Lindungiku dari putus asa
Jika ku harus mati
Pertemukan aku dengan Mu

Tuesday, July 20, 2010

Where its all begin...

15/06/2010
First visit to KMC – Dr. Kamarulzaman (O&G Specialist)
Scan showed AFI of 29cm + glucose in urine.
Dr. Kamal mentioned his concern on the high liquor level.
Polyhydramnios
Could be due to few possibilities, and since glucose level sedikit tinggi, he ordered 2 hr Glucose Tolerent Test for the next day.


16/06/2010

2 hrs MGTT. Been fasting from the midnight. (Throw up a bit during the test)
Test result come back normal – so Gestational Diabetic is not the reason for the high amniotic level.
Next appointment in 2 weeks time.

27/06/2010
First visit to KK Kubur Panjang – Dr Jayasree
Scan showed AFI level increase to 33cm.
Dr. Jaya advice to follow up at Hospital Sultanah Bahiyah for Anomaly Scan (detailed anatomy scan)
Request to follow up from KMC instead since Dr. Kamal pun ada mentioned nk buat another test if the Glucose Test come back normal.


30/06/2010

Follow up with Dr. Kamal @ KMC
Performed Anomaly Scan.
AFI level increase to 35cm.
Scan showed baby’s distended bowel with ‘Double-Bubble’ sign.
Possibilities of Duodenal Atresia.
Dr. Kamal advice to follow up for 2nd opinion with Dr. Bavanathan – Perinatologist/Feto Maternal at Hospital Sultanah Bahiyah (High Risk Pregnancy specialist for Northern Region).
He personally rang Dr. Bava (who happened to be his student ages ago) to discuss my conditions.
Appointment was set for the next day.


01/07/2010
First appointment with Dr. Bava @ Hospital Sultanah Bahiyah.
Dr. Bava & his team (2 other Registrar) performed another Anomaly Scan
Confirmed Double-Bubble sign.
Cardio Chogenic focus scan – Heart.
(dinding baby’s lung sedikit tipis, might be due to pressure from excessive liquid.)
Ask about any chromosome abnormalities – based on the scan, they don’t find any soft marker or abnormalities (yet).

Result
- Possible diagnosis of Duodenal Atresia
- Baby will need urgent surgery after delivery
- Dr. Bava suggest to deliver here in HSB since the specialist Paed Surgeon only available here.
- high risk of preterm labour
- suggest to induce early (36 weeks GA)
- ordered mummy to have steroid injections to help mature baby’s lung.
- Dr. Bava to contact Surgical team (paed)
- next appointment 21/07/10.

02/07/10
Hospital Sultanah Bahiyah- Labour room
2 steroid injections within 12 hrs interval.
8.00am – mummy got the first steroid shot (ouch!)
8.00pm – the second n last shot.

Current management
Continue follow up with KK for weekly antenatal check up
Home visits by senior nurses weekly
(so, bi-weekly monitored)

Note for tomorrow appointment (21/07/10)
Anxious to wait for tomorrow’s appointment...
Hopefully Dr. Bava could decide when to induce sbb daddy need to confirm the date so he can be with us.
Method of delivery: normal or c-sect? (baby still not engaged and might not be since too much liquid), hubby suggest to opt for elective c-sect to reduce stress on mummy n baby. Will consult with Dr. Bava.
To be introduced to the Neonatal team.
Possible for early admission?
To ask doctor on how severe baby’s condition? (mummy need to study more on DA today)


Ya Allah ya Tuhanku..permudahkanlah perjalanan kami.. semoga kami tidak diuji dengan penyakit2 yg tak mampu kami ubati.. amin..

Saturday, July 17, 2010

more 3d/4d photos

okeh, sambungan semalam..

::it's me!::


::Dr. ckp saye tgh bersiul2 sampai muncong2 molot::


::me in black n white::


:: my hobby: sucking my thumb ::


:: my hobby: Punching mummy's uterus wall ::

Friday, July 16, 2010

32 weeeks: 4d scan

kite lupakan sekejap lah kisah sedih tu yer..
i am soo happy sehari dua nih after seeing my baby smlm.. :)
walopon my case dah di transfer ke Hosp Sultanah Bahiyah, i decided to go back to KMC yesterday.. saje laa nk g jumpa doctor kamarulzaman, nk say thanks suma2 sbb he is the one yg found out about my conditions and all the advice he given to us.

so, meeting smlm pun more macam informal jer laa.. sembang2 on future management plan of delivery and dia pun ckp, boleh aje if i still insist utk deliver here in KMC, tapi the baby will still have to be transferred to HSB sbb the surgeon is there.. tak nak lah saya berpisah dgn baby seawal itu kan..

lepas sembang2 tu, i ckp ler, boleh tak nk buat 4d scan skali lagi.. dia ckp no problem, so di godek2 ler perut saye.. fluid keep increasing, resulting a clearer scan. baby sgt selesa dlm perut mummy, masih boleh berenang2 kesana kesini walaupun dh 32 weeks.. (but of course la ade contradiction nyer..)

anyway, babys measurement adelah normal.. mmg as per schedule.. weight pun dh 1.95kg. so, insyaAllah, boleh capai target at least 2.2kg before induce nanti.. Alhamdulillah.. legaaa sgt bila dpt tgk n tahu babys conditions so far.. dh lama rasanya mummy berendam air mata.. kalau tak, asik dpt bad news jer for the past 2 weeks..huhuh

hubby pun happy sgt when i emailed the photos.. i know its been really hard for him as well.. dah la jauh.. then his work itself yg been very demanding.. *sigh*..

eh, enough with those sad story mummy! lets show some photos :)




alamakk... internet slow ler plak.. besok ler sambung.. tskk..

Tuesday, July 6, 2010

When things dont go our way..

my poor baby has been diagnosed with duodenal atresia..
please pray for his health and safety and hopefully he will be strong and keep hang in there for few more weeks..

mummy n daddy loves you soo much and will do our best for you..


will update more when i have the strength to do so..