Pre-Verbal Seminar

Lamanya x update.. Mama dh ada few draft dlm phone, tapi for some reason kalau ada gambar or video tak boleh nak post pulak.. Nak save online pun x boleh.. Pelik betul la.. Nak buka computer malas gilaaaa..!

Anyway semalam mama pegi seminar  Communication for Pre-verbal. Ada 2 session, pagi from CATTS speech theraphy and second part from IBCSR - ABA Theraphy for DS. Actually main reason mama join sebab ABA ni la.. Nak tau lebih lanjut how ABA could help Z. But turn out their talk is more nak menjual product. CATTS pun menjual jugak, but they give very details information on how their method could help n dalam masa yg sama x lokek sharing their knowledge. ABA pulak is a well known approach in Autism world, and recently there also study yang they could help with DS too. Tapi penyampaian diorang tak kena kot. 

Anyhoo thats not what I want to blog about, thats more.. I am very surprise to see cikgu Z Yvonne there!! Terharu giler mama. Sampai2 jer terus nampak dia. Dia cakap memang dia datang untuk get some information untuk bantu Z. Seminar ni anjuran private and berbayar, and she choose to pay and come just for Z!! Sangat proactive! (Nasib baik mama pun datang, kalau tak buat malu jer.. Hihihi). Macam mama, dia pun datang nak tahu details pasal ABA tu, but end up keciwa. Masa parents lain bertanya soalan re their childs behaviour, dia yang tolong jawabkan sebab dah bengang dengan geng2 ICBSR tu hehehe.. 

Kebetulan jugak mak budak yang dia jaga before Z (nama Jacob) pun datang. So masa lunch tu kitorang borak2. Mak Jacob (Deirdre) cakap both of us are soo lucky to have Yvonne. Masa Jacob masuk preschool dulu pun dia belum boleh jalan or cakap, bila dapat Yvonne la things started to improve. Cerita Jacob memang sangat familiar with Z. Jacob now dah 6+ n masuk senior infant dah. He is very witty according to his mom. Pot pet pot pet je.. Mak dia cakap masa masuk sekolah (junior infant) baru dia start bercakap. And she also highly recommend CATTS. Sejak dgn diorang la Jacob mula bercakap. Actually mama memang dh register dengan CATTS 2 weeks ago. Tengah tunggu first appointment jer nih, and I can not wait :D.

Berbalik pada Yvonne, yer I can not thanks her enough. Dia memang bersungguh2 nak tolong Z. Dia cakap dia faham only mama n papa jer yang concern about Z kat sini and she wants me to know that we also have her. She will try to get as much help as she could for Z. (T___T)

March 2014

Mama nih nama je keje part time, tapi setiap hari ada jee appointment or things to do sampai x sempat nak update blog :p

Lagipun setiap pagi Rabu which supposed to be my 'me time' tu telah digunakan untuk ke office :(.. Yer office.. Apa nak buat, banyak lagi keje walaupun dah hand over.. N the replacement pun still baru, nak tak nak mama jugak la yg kena buat.. Hopefully next week mama dh tak perlu lagi pegi office hari rabu.. 

Anyway, 21st March is World Down Syndrome Day. Ada coffee morning n viking tour organised by DS Dublin. Tapi kami x join pun. Mama x rasa mama bleh handle Z sorang2 naik turun boat since papa keje that day.. Mama n Z cuma keluar bersiar2 jer. Masa lalu dekat Mothercare tu, macam biasa la ada orang yg akan approach bagi voucher untuk photoshoot. Selalunya mama x layan pun, tapi haritu mama rasa macam nak buat photoshoot pulak sempena WDS day tu kan.. So go ahead je la.. Z dah la tengah mengantuk n cranky. Hentam je lah.. Tatau ler camner rupanya.. Esok baru gambar siap.. :)

23 March tu pulak birthday mama. Tak keluar pun, sebab nk celebrate di London nanti. Tapi ptg tu papa buat surprise jugak :) 

 

Papa keluar dgn Z nk pegi kedai ayam katanya.. Masa papa balik tu mama mandi, lepas mandi tengok2 dah ada kek bunga n kad atas meja.. Hehe thank you papa n Z :). Hadiah tahun ni, trip ke London. Mama rindu London :)

26-29 March tu ke London, nanti lah mama buat post lain..

Oh terlupa pulak, 20 March tu appointment dengan paed, dr Murnaghan. Review thyroid, tsh level masih tinggi 6+ (others normal). Frust jugak mama sebab mama dh bagi Z supplement to help his thyroid, tapi still x turun2 tsh nya. Mama rasa sebab susu soya lah.. But takde choice lain dh untuk formula milk. Goat milk ada la, but since Z allergy to cow's milk, highly likely dia x boleh tolerate goat's milk juga.. Unless we go to non formula milk macam almond ke.. Tapi x de extra added nutrien la.. Mama nk call dietitian la..

Berat Z dah naik! 13.3kg now :) dalam masa 6 bulan naik dekat 3 kilo. Sebelum nih setahun naik 1 kg jer hehe.. Dr Murnaghan very happy with his health condition now, so next appointment tahun depan jer. But we still will so thyroid test every 6 months.

Obsess dgn pintu (-___-)

He is still considered risky for autism though.. So kena buat follow up lagi dgn phsychologist... Hmm... 

31 march pulak appointment dgn ENT. finally we managed to finish the test. And he failed :(. Dia boleh dengar, but has to be very loud. The Tympanometry test showed he has fluid in middle ear. So, thats must be it since his ABR test normal. Highly likely kena pasang grommet. Next appointment dgn ENT surgeon end of May. Lambat lagi.. 

Tu je la kot update for March :)