WW: All Life is Precious

hand stamped jewelry - Design By Mrs

First Step

Alhamdulillah, at the age of 3y3m Z finally confident enough to make his first few steps on his own!

Sejak 2-3 minggu kebelakangan ni Z memang suka berjalan. He will grap our hand and will direct us to wherever he wants to go. Tapi kalau kita lepaskan tangan, automatic dia akan duduk balik. But on Friday (15/11/2013) he managed to walk a few steps on his own! 

Rasanya dia tak sedar pun yang dia berjalan sendiri sebab terlalu kusyuk tengok TV :D.

But after that mama berjaya buat Z berjalan few more steps on his own. A lot of practise to do anyway..

Seperti yang diberitahu oleh his therapiest before, he is more than capable of walking, cuma dia takut. Terlalu berhati-hati. Yvonne pun kagum dengan 'kesopanan' dia. Contohnya kalau nak bangun or duduk, he will do it properly and gracefully. Bukan main hentam jer. Nak panjat/turun tempat tinggi pun dia akan buat dengan cara yang betul. Tak pernah lagi dia jatuh kerusi meja or even time berjalan. Kadang2 tu dia memanjat meja. Dah sipi2 bucu sangat dah, instead of bringing him down, mama saja jer biarkan, nak tengok. He will touch the edge, then he move away from it. He knew he's going to fall.  He just being extra careful about everything!! Penakut pun yer jugak..

It will still be a long journey before he can walk properly, but any journey begin with the first step right? 

Tak pe lah lambat pun yer sayang.. Mama tahu, anak mama want to do it the right way :)

Proud Momma :)

Paed, Dietitian & OT

Last week ada (6-monthly) appointment with Dr Murnaghan. We dont have that much concern except for his last vomitting episode and his growth.

Winter Coat 2 tahun lepas pun masih boleh pakai (tangan je pendek skit)

Issue growth ni timbul bila mama keluarkan baju2 winter Z last year and they still fit him nicely! Macam x naik langsung.. Seluar jer la yg pendek sikit, tu pun ada few yg masih boleh pakai (save bajet..)

His latest measurement

Height 91.5cm

Weight 11.35kg

Naik la jugak sebenarnya, but not so much. In term of height, he is still in 90th percentile of Ds growth chart (meaning that if we take 100 DS childs at his age, only 10 of them are taller than him) and if compared to normal growth chart, he is average - which quite true since he is the same height with his classmate. But his weight is the biggest concern. He is only in 25th percentile! 

Because of that, Dr Murnaghan terus panggil Val (Dietitian) for consultation. After brief discussion, she still happy with Z's meals quality n quantity. The only problem is his milk. 

Sekarang dia memang x minum langsung di sekolah (thats also the reason for constipation). He only take 6oz in the morning n another 6oz in the evening. Mama memang bekalkan susu kat sekolah, tapi diorang kata Z tak nak. Mama rasa 2 sebab Z tak nak, 
1. Diorang bagi dia minum while sitting uncomfortably on the chair 
2. They dont really care..

So, Dr Murnaghan n Val suruh mama ckp kat cikgu diorang nak Z habiskan jugak at least 1 bottle of milk in school. (6oz of milk ada 400+ calories, for kids as little as Z, thats quite significant!)

On another note, Z also hv follow up visit by his OT, Sinead. Last jumpa raya haji haritu. Mama takde la this time, Sinead pegi sekolah Z jer. But she did provide me summary. 

She brought in 'Heathfield Chair' kerusi khas utk Z. Kerusi ni will provide good support for his posture. Hopefully will help during his feeding time too. 

This tiny chair cost over £500!! (luckily we have it free on rental allowance)

Then dia ada jugak bagi few suggestion on activities n toys that are appropriate for Z's stage. Most of those stacking toys memang dah ada 3-4 jenis dah pun (kena carik balik dlm stor la sbb beli, then Z x main pun..). Tapi toys yg jenis pop up tak penah beli lagi. Nanti lah mama survey..

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Mama sgt berpuas hati dgn Sinead nih. Worth the wait! OT kat Ireland nih mmg sangat susah nak dapat. We have to wait for over 2 years!! Mama dh try carik private in between, memang x de yg kat area Dublin City. Kena travel jauh, susah la utk mama yg x de kereta (or even Irish license) nih :(. Anyway, we supposed to start OT hujung thn lepas, tapi Z kan sakit time tu.. We only managed to officially begin therapy summer haritu jer. Once a week in the beginning sbb Sinead agak risau dgn 'kelewatan' Z. Mmg nampak bnyk perubahan since.. Alhamdulillah :)

*Update (13/11/2013): Harini Mairead (Home Teacher merangkap main contact for Z's welfare) datang ke sekolah Z untuk berbincang dengan manager pasal his milk intake. She also bring in the recommendation from Dietitian and Paed. Hopefully lepas nih pihak sekolah tak akan mengelat lagi bab2 susu Z nih.. :)

Weekend is over already :(

Ish apesal la cepat sangat masa berlalu nih.. Weekend pun x terasa.. Stress!!

Anyway quick entry for last week (and beyond),

1. Halloween

Zach Cullen

Halloween 31st Oct. Mama memang perasan notis kat sekolah suruh bebudak dress up. Tapi mama malas nak layan, konon2 biar jer la Z pakai baju biasa. Sekali hari rabu tu cikgu siap pesan lagi sekali, pakai costume tau. Semua orang pakai, nanti ada activity macam2 and ada gambar kelas semua.. Lerr.. takkan la Z sorang2 pakai baju biasa pulak kan.. So ptg tu jugak mama pegi carik baju. Dah last minit memang ler x jumpa size.. Nasib baik ada baju vampire nih kat mothercare. On sale pulak tu sebab clearance halloween dah nak habis kan. Mama kena potong sikit seluar dia.. boleh laa.. tu pun cikgu kata Z pakai sejam lebih jer, pastu dia dah nangis2, so diorang tukar.. Asal boleh jer la yer..

2. Mummies day out

Mama n anti La and anti Yas pegi Kildare Village on Saturday. Keluar pukul 9, ingatkan by noon dah balik ler.. rupanya pukul 6 ptg baru sampai rumah. Kesian Z dok rumah dengan papa jer Sabtu tu. Ahad baru bawak keluar.. Btw mama tak beli apa2 pun utk diri sendiri. Just bought winter jacket for Z and papa jer.. Mama nk menabung untuk next 'Mummies Day Out' in January ;)

3. Z is sick again! (24/10/2013)

This was last weekend actually. Khamis. Masa mama sampai sekolah around 6.15pm camtu, Z tengah melalak sambil cikgu dia ambik temperature. GIGIL2 badan dia. Cikgu kata dia baru nak call mama, kejap tadi Z muntah. He was a bit off that afternoon but no temperature. Yvonne cuti this week, so Z macam rindu dekat Yvonne kot diorang kata.. (padehal sebab takde org layan Z la tu..) Anyway, mama terus ambik Z, badan tak panas, tapi melalak sampai gigil2. Risau giler mama masa tu.. Mama peluk jer Z sampai dia tenteram.. tu pun dalam 15 minits jugak la mama duduk jer tengah2 sekolah tu.. tak lama kemudia dia muntah lagi. Memang volatile vomitting. Terus temperature naik to 38.5. Sah dah! dah ler dah 3 hari Z tak poo poo. Call papa, dia on the way lagi, macam mana mama nak bawak g spital nih. Mama angkat jer, lagi Z melalak macam sakit sangat.. Nasib baik bila dah lepas muntah dia macam cool down sikit. Pakaikan jaket, then terus balik.

Malam ingatkan nak bawak pegi hospital, tapi dia dah tertido keletihan.. Kalau bawak pegi pun, bukannya diorang akan buat apa2 pun.. so kitorang plan untuk tunggu dan lihat, kalau dia muntah jer lagi sekali, memang kena bawak jugak la.. Alhamdulillah takde muntah2. Tengah malam tu dia poo poo. so ok la sikit kot..

Then Friday tu dia start cirit birit plak. tak frequent, but 3-4 kali jugak la that day. Tak pe la, at least boleh kosongkan bowel dia. we start the same regime as last time, bagi liquid (and fruit pureed) jer the whole day. Alhamdulillah hari sabtu dah ok sikit, dah boleh la main2 sikit. Temperature pun dah normal. Still soft poop, but not cirit.. Legaa mama.. Nasib baik bank holiday weekend, so lama sikit boleh look after him at home.

Anyhoo.... Last year it was during this time as well (November) when Z start muntah2 - tak teruk pada mulanya.. then it reappeared after 1-2 weeks. And then makin teruk. Until 2 months later, he has to undergone surgery. (No, we did not wait until 2 months baru bawak g hospital, we did bring him to countless GP visits and AnE 3 times between those period before they trust us that he had bowel obstruction!!!! kalau ingatkan memory taun lepas, rasa macam nak bakar jer hospital tu.. GGRRR!!!)

Ya Allah.. Risau betul la mama..  Kena make sure Z poopoo all the time la.. Will start him on lactulose soon.

So, itu jer lah update for the past few days. Busy gilos kat opis harini (macam biasa). Skip my lunch (mcm biasa jugak) but this time updating the blog ;)

TGIF

What a hectic weeks lately! Tak sedar pun dah Friday. Seriously busy at work. Hate it so much! Especially when people dont appreciate you. Macam nak hand over resignation straight away jer.. Grrrr..!! started to think that coming back to work fulltime (with the intention to clear out my back log) is a stupid idea altogether. Should just leave it with them to look after it. I dont owe anything to them actually ;((

Tetiap hari is a rush. Z has to be in school until 6.30pm everyday. Tu pun papa yang ambik, mama pukul 8 baru sampai rumah. Sedih teramat. Quality time with Z entah kemana, therapy and all pun entah kemana. And the worst thing is I know he wasn’t happy in the crèche. Kalau hari yang mama pegi ambik (sebab papa balik lambat), I can see he was soo tired, soo comot and sometime with an empty stomach. I pay the crèche about 1/3 of my salary every month, and this is how he being treated?? It really is not worth it..Geram sangat. But the thing is, it just their common practise. semua budak pun comot. the different is Z can not express himself like other kids. other kids when they are hungry, they will shout. when they are bored, they will find some other amusement. But Z..? What can he do?

Sorry Z.. Mama have promised you that it’ll only happen for 2 months, but actually now I have to work at least until end of this year. 2 more months to go, or maybe will be longer since I still haven’t event got the chance to submit my proposal/application. Sigh.. am so tired.