Lilypie Premature Baby tickers

Lilypie Premature Baby tickers

Tuesday, June 11, 2013

2 tahun 10 bulan

Dah dekat 3 tahun dah anak mama.. dah lama mama rasa tak update pasal development Z.
Berat: 10.9kg (latest)
Tinggi: 89cm (April)


In term of skills, mama rasa in the last 2-3 months Z has improve a lot. Sekarang nih sedang galak memanjat. semua tempat dia nak memanjat. Cruising pun makin jauh. InsyaAllah, harapnya tak lama lagi Z boleh berjalan la.. Haritu physio Emer datang and buat full asessment. Dia cakap in term of physical, Z memang tak ada masalah (except the low tone of course). His legs are fine, his posture is perfect, his spine also good. Mama risau la takut dia ada flat feet ke, curvy spine ke.. because all those could affect his walking ability. Alhamdulillah everything is ok. Cuma dia jer yang tak nak berjalan lagi. Manja. He has no interest to explore around, that's why dia tak nak berjalan.


Speech pulak, Z dah banyak babbling sekarang nih. Sejak awal tahun ni memang bertambah tambah bising mulutnya. Tapi still tak de words keluar. Sebut mama pun belum. But he likes to sing (not so much in tune) to his favorite song. Twinkle-twinkle little star.. Dora.. Head & Shoulder.. Old McDonald.. etc.. kalau those songs keluar kat TV or mama nyanyi, mesti Z akan turut serta; dalam bahasa dan irama dia la.. but I noticed the sound he makes is always the same. So memang dia menyanyi la..

Anxiety pun dah improve a lot. Z dah tak menangis di sekolah. Pagi mama hantar (sejak hari pertama ke sekolah after surgery) dah takde drama air mata. Cikgu pun dah tak perlu nak dukung Z. Biar jer dia merayap merata kelas.Dengan home teacher, Mairead pun Z dah ok, walaupun di rumah. Paling aneh 2 minggu lepas appointment dengan Kerri SLT. Sebelum ni Z kalau nampak Kerri macam nampak hantu. Infact, appointment dengan Kerri la the first time when I noticed Z has strangers anxiety. Ingat lagi tahun lepas, dia punya melalak.. mama pun nak tumpang sekaki. Since then, jumpa jer Kerri, memang tak payah pujuk la, meraung jer kejanya. But 2 minggu lepas, for the first time, at home pulak tu, Z tak melalak!!! bukan tu aje, siap ajak Kerry main bola lagi. Bila Kerry nak balik, baru dia melalak - tak bagi Kerry balik sebab nak main bola. AMAZING! 
Di sekolah
Masa jumpa Maeve (Psych) re austism (nanti la mama update pasal nih), dia tanya do you think his anxiety level now is reducing, because he is really recovering or because he just get use to those people? That's make me realised.. Actually bila jumpa orang baru (eg: ENT) Z still melalak. strangers menyapa di tengah jalan pun Z tak layan. Pegi tempat baru pun Z masih melalak. So he still has anxiety, but the level might have lowered and the reason his life is much more calmer is because he just know or get use to a lot of people now. His circle of trust is expanding.. Tak per la, at least ada improvement kan... :)

I now focusing on his hearing. Walaupun his ABR test comes out normal (20-30 db), but mama tak rasa Z dengar dengan sempurna. Dah 2 kali jumpa ENT. The first one, tak dapat buat apa pun sebab Z melalak and he got bad congestion as well. Last week jumpa lagi, dah boleh la test sikit. But he still not cooperate much. Plus his ear canal is too narrow, doctor tu tak dapat nak access betul2. But she thinks he has fluid in his middle ear. But he never had any ear infection. Dia cakap tak semestinya kalau ada fluid, kena infection. Banyak jer kids yang not even realised they had fluid in their ear. He probably had those since he was little, he already get used to that and the sound surrounding. No wonder he is not able to say any words. Papa pun jadi 'wawa'. because that's how he heard it. 

Masa first time jumpa ENT dulu (early May) dia suggest letak olive oil untuk clear the wax. Mama dah try banyak kali prior to 2nd appointment. Memang takde apa langsung yang keluar. Dia cakap maybe fluid tu dah keras dah, thats why tak boleh cair.. So she has refer us to ENT surgeon. Z might need grommet/tube on his ear.
the appointment will be in Augus - kebetulan Z dah dapat appointment untuk his tonsil (re sleep problem), boleh sekali harung.. 

Sedih jugak mama rasa sebenarnya.. 'If' his hearing was sorted earlier, he probably wont have much problem with speech now.. Hearing test normally done when they were 3 months old. tapi Z dah pindah randah.. Pastu susah giler nak masuk health system kat sini.. Everything is delayed. ABR test tu pun buat with private masa balik bercuti di malaysia last year. Kesian Z.. Dia boleh la dengar, cuma bende yang dia dengar tu lain jer la.. That's why he is confused and wont be able to pronounce it.

Tak per la, better late than never.. I dont think I can wait until August. August nanti examination jer dulu. kalau betul, ntah bila pulak surgery nya (some people on DS ireland forum say they have to wait 3-6 months just to get that tiny grommet surgery..) I read from few other forum, some people recommend EARDOC, katanya boleh membantu open up the midle ear and loosen up the wax/fluid. So mama dah oder semalam. Hopefully membantu and tak perlukan surgery. Tapi mama rasa ear wax Z tu dah keras batu dah kot.. tak sure la berkesan ke dak.. tengok ler macam mana nanti.. yang penting kita berusaha yer dak?

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